World Bladder Cancer Patient Coalition (BCC+BCAN+UK Bladder)That was the link that I posted months ago.
Don't worry. The word will spread quite rapidly among the patients community, once we have solid data on a statistically significant pool of patients. Timing couldn't be better to spark a fire and spread the news at speed of light. 18 March, 2019 New global bladder cancer patient organization launches
For the first time ever, people affected by bladder cancer – the 10th most common cancer in the world, with more than half-a-million new cases reported every year – will have a global voice.
BARCELONA, 18 March, 2019 – The World Bladder Cancer Patient Coalition (WBCPC) officially launched today at the European Association of Urology congress in Barcelona, Spain.
The need is critical. Bladder cancer is the 10th most common cancer in the world, with more than half-a-million new cases reported every year.1
Three major bladder cancer organisations, The Bladder Cancer Advocacy Network (US), Fight Bladder Cancer (UK) and Bladder Cancer Canada worked together to found the organization.
“Treatment, research and support for bladder cancer patients varies widely across the globe and even within countries,” said Ken Bagshaw, the current President of the World Bladder Cancer Patient Coalition. “It’s critical that we mobilize bladder cancer patient organizations across the world to help ensure the best possible outcomes for patients.”
“The World Bladder Cancer Patient Coalition unites patients around the world giving them a powerful voice in the fight against a lethal disease that significantly impacts not only their survival but also their quality of life,” adds Piyush Agarwal, of the Center for Cancer Research, (U.S.) National Cancer Institute. “The World Bladder Cancer Patient Coalition aims to create a global voice that hopes to alleviate much of the pain and suffering associated with bladder cancer.”
The mission of the World Bladder Cancer Patient Coalition is to:
• Foster an international community of people affected by bladder cancer
• Advocate for access to the best possible bladder cancer information, support, and care
• Build alliances with health professionals, policy makers, academics, researchers, and industry
The World Bladder Cancer Patient Coalition is governed by a board of directors, composed of people diagnosed with bladder cancer, carers of bladder cancer patients and those engaged with bladder cancer organizations at the national level.
The World Bladder Cancer Patient Coalition was officially launched at the European Association of Urology Congress #EAU19 in Barcelona Spain on Monday 18 March 2019 at 16:00.
CONTACTS
Ken Bagshaw, +1-905-269-4728, kenb@bladdercancercanada.org
Lydia Makaroff, +44 7427 547783, lydia@fightbladdercancer.co.uk
Andrea Maddox-Smith +1-301-215-9099 amsmith@bcan.org