RE:RE:RE:RE:RE:RE:RE:Updated clinical trial Thx Juniper...Of course nobody here including me would take offense if you dont feel like replying to any and all questions .
You are probably the most knowledeable poster here on the conduct of clinical trials .
On a personal note I have also gone thru a very stressful experience with my wife after she suffered a terrible brain hemorrage and was told that she would never be able to live a normal life and be confined to a wheelchair ....She now walks 5-6 kilometers a day without any help whatsoever....She says that I am the one who gave her the strength to undergo close to 2 years in rehab.... She is known as a miraculous case at the rehab center.... So miracles do happen .....keep the faith and keep being strong for your wife...
juniper88 wrote: When you are enrolled in a trial there is standard paperwork that the patients sign. It is modified based on each trial specifcs, like side-effects, what the patients pays and what the sponsor pays, what tests there are, etc. I have not seen any non-disclosure wording in any trial paperwork we have seen (probably 10 or so) That said I believe very few people would say much about what is happening in a trial. It is not exactly on top of most people's mind. Also at this point you become afraid of false hope. The decrease in my wife's ca125 is encouraging but I really temper my hope. I would at least want to see a CT scan with tumor regression.
palinc2000 wrote: If Juniper has any free time I would like to know if he is allowed without any restricions to discuss and or report anything about his wife's trial
From his posts it seems he is free to report any findings.
If this is the case then I would guess that positive data ftom the TH1902 trial would be disseminated rather quickly by the patients .....So if there are tumor regressions in the 30% plus range on more than 2-3 patients then that info would circulate quite rapidly