Not intended for U.S media
- Merck-sponsored survey developed in collaboration with IACO and Eurocarers reveals lifelong effects of caring for a
loved one with MS
- #MSInsideOut documentary film, executively produced by Shift.ms, provides artistic take on the experiences of those
impacted by MS
DARMSTADT, Germany, Oct. 11, 2018 /CNW/ - Merck, a leading
science and technology company, today announced the publication of results from a global Merck-sponsored multiple sclerosis (MS)
carer survey, as well as the premiere of the #MSInsideOut documentary film, Seeing MS from the Inside Out,
executive produced by Shift.ms, a social network for people with multiple sclerosis, at the 34th Congress of the
European Committee for Treatment and Research In Multiple Sclerosis (ECTRIMS), in Berlin,
Germany.
To view the Multimedia News Release, please click:
https://www.multivu.com/players/uk/8411851-merck-survey-and-film-multiple-sclerosis/
The 'Living with Multiple Sclerosis: The Carer's Perspective report was developed in collaboration
with The International Alliance of Carer Organizations (IACO) and Eurocarers to examine the experiences of 1,050 multiple
sclerosis (MS) carers across seven countries (US, Canada, UK, France, Germany, Italy and Spain). The survey found that almost half (48%) of those surveyed became MS carers when they were below the
age of 35, and nearly one in three had been caring for somebody for 11 years or more.
Additional key findings from the carer survey included:
- 43% and 28% of carers surveyed reported an impact on their emotional/mental health and physical health respectively
- 34% said being an MS carer impacted their financial situation, more than a third (36%) stated they had to take time off
work, and as a result, 84% of those carers reported their work and career being impacted
- Only 15% of carers surveyed connected with other carers or patient organisations to help cope with the challenges of their
role
"MS can be a devastating disease for both patients and carers, with the responsibilities assumed by carers over an extended
length of time and intensifying as the disease progresses. Carers can experience a profound impact on their physical and
emotional health, finances, and employment," said Nadine Henningsen, Board Chair, IACO. "Not
surprisingly, the survey results reinforced the large number of young people who are becoming carers - often in a formative time
of their life."
As part of the #MSInsideOut campaign, an initiative aimed at providing a deeper understanding of MS, the MS Inside Out
documentary film, 'Seeing MS from the Inside Out', will be premiered. Developed with Shift.ms as executive
producers, it is the first global documentary film to pair artists and people from across the MS community, with a view to
interpreting the experiences and perspectives of those impacted by MS through art.
"In line with our broader mission at Shift.ms, the aim of this documentary is to highlight the individual stories in a unique
and innovative way across the MS community, digging deeper into the elements of MS that remain under-represented with a view of
interpreting the unmet needs of those impacted by MS through art," said George Pepper, Co-founder
and CEO, Shift.ms. "By bringing these stories out into the open we will be able to address those challenges that remain, opening
lines of communication and ultimately raising awareness of MS."
The documentary follows three stories: Maria Florencia, a person living with MS from
Argentina, Jon Strum, a caregiver from the US, and Dr.
Luigi Lavorgna, a healthcare professional from Italy. Each was
paired with a local visual artist to bring their stories to life through an emotional interpretation not bound by words but
through art, reflecting the often difficult-to-explain nature of MS.
The premiere will take place at 18.00 - 19.30 CEST today on October 11, during ECTRIMS 2018 and
can be accessed through a livestream link here: http://www.touch-stream.com/MSinsideout
"At Merck, we are extremely proud to highlight the unmet needs in the community through our work with Shift.ms, IACO and
Eurocarers which expose the experiences of different members of the MS community, including the perspective of MS carers, whose
voices have traditionally not been heard as strongly," said Andrew Paterson, Senior Vice
President, Global Head of Neurology and Immunology, at the biopharma business of Merck. "Forming part of our ongoing company-wide
commitment to carers, and connecting with the broader Embracing Carers initiative, the outcomes from both the survey and
documentary film highlight the need for additional support and awareness. We therefore encourage and call upon the MS community
to take these findings and identify ways in which they can better assist both MS carers and patients."
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About Multiple Sclerosis
Multiple sclerosis (MS) is a chronic, inflammatory condition of the central nervous system and is the most common,
non-traumatic, disabling neurological disease in young adults. It is estimated that approximately 2.3 million people have MS
worldwide. While symptoms can vary, the most common symptoms of MS include blurred vision, numbness or tingling in the limbs and
problems with strength and coordination. The relapsing forms of MS are the most common.
Merck in Multiple Sclerosis
Merck has a long-standing legacy in neurology and immunology, with significant R&D and commercial experience in multiple
sclerosis (MS). Merck's current portfolio includes two products for the treatment of relapsing MS, with a robust pipeline
focusing on discovering new therapies that have the potential to modulate key pathogenic mechanisms in MS. Merck aims to improve
the lives of those living with MS, by addressing areas of unmet needs.
About Merck
Merck is a leading science and technology company in healthcare, life science and performance materials. More than 53,000
employees work to further develop technologies that improve and enhance life - from biopharmaceutical therapies to treat cancer
or multiple sclerosis, cutting-edge systems for scientific research and production, to liquid crystals for smartphones and LCD
televisions. In 2017, Merck generated sales of € 15.3 billion in 66 countries.
Founded in 1668, Merck is the world's oldest pharmaceutical and chemical company. The founding family remains the majority
owner of the publicly listed corporate group. Merck holds the global rights to the Merck name and brand. The only exceptions are
the United States and Canada, where the company operates as EMD
Serono, MilliporeSigma and EMD Performance Materials.
About Embracing Carers
Embracing Carers is a global initiative led by Merck KGaA in collaboration with leading caregiver organizations around the
world designed to increase awareness, discussion, and action about the often-overlooked needs of caregivers. Given that
caregivers need support and often do not know where to turn for help, Embracing Carers was created to help fill that void.
About IACO
The International Alliance of Carer Organizations (IACO) is a global coalition of 15 member nations committed to building a
global understanding and respect for the vital role of family carers. Recognized as an official NGO by the United Nations, IACO
works to improve the quality of life and support the needs of carers, through international partnerships and advocacy that
strengthens and honors the voice of carers. To learn more, visit http://www.internationalcarers.org.
About Eurocarers
Eurocarers is the European umbrella organisation representing informal carers and their organizations, irrespective of the
particular age or health need of the person they are caring for. Eurocarers works to raise awareness of the significant
contribution made by carers to care systems while ensuring that all relevant policies across Europe take account of their needs and preferences. To learn more, visit http://www.eurocarers.org.
About Shift.ms
Shift.ms - http://www.Shift.ms - is the social network for
people with multiple sclerosis. Founded by MSers, for MSers, the charity supports many thousands of recently diagnosed people
across the world as they make sense of MS. It's independent and it's free.
About #MSInsideOut
#MSInsideOut is a campaign supported by Merck which focuses on understanding the journeys people living with MS face
and telling the inside story of the disease. For more than 20 years, Merck has been relentlessly focused on understanding the
journey people living with MS face to create a meaningful, positive experience for them and the broader MS Community. With the
#MSInsideOut campaign Merck aims to better understand MS and, importantly, enable others to do the same.
(Logo: https://mma.prnewswire.com/media/697963/Merck_MS_Inside_Out_Logo.jpg)
Video: https://www.multivu.com/players/uk/8411851-merck-survey-and-film-multiple-sclerosis/
SOURCE Merck
View original content: http://www.newswire.ca/en/releases/archive/October2018/11/c6229.html